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20 July 2003

 
Deb (sounding upbeat and nice)
> Hi - Can you send me a list of phone numbers for E's contacts - job case worker, payee, etc. It will help for emergencies. Also can you find out how many vacation days she has left? i know that camp will take up 5 days and as we are doing a 2 week cruise I don't expect she has enough time left for that. Whenever you get the chance.
>
> I was thinking you both should come out to NYC for Christmas - everyone is at Karen's and R has the week between Christmas and New Year's off - plant shut-down. So we could spend some time in museums, galleries, the Staten Is ferry, etc. Let me know what you think. There is an interesting hotel we have stayed in on 26th St which we could book. It's called Leo House and is run by nuns. It's on the major n-s bus line and has a great buffet breakfast on site.


> Next year we will have to sort out vacations sooner. Lenny isn't going on this one, so R is the only guy with 4 women.

Me (sound horrible in my misery)
=explained E's job problem of the moment= I said she needed to have a monthly meeting wherein the job requirements and things like vacation days, sick days, etc. could be explained. Not once, but over and over. I asked two friends who are Special Ed. teachers -- they suggested the monthly job info meeting, and believe it would help. I think there's a large amount of disagreeableness on the part of untrained people involved in E's work life, who expect her to be uncomplicated. Elizabeth is a DD person, and one would expect others to understand that, and know that being DD includes a lot of abnormal behaviour by definition. If she loses her job I'm not quite sure what will happen, as she has no social security at this time. However, I suppose we could apply under an emergency basis then. And there wouldn't be any worry about having enough vacation days. I also asked for about the 300th time about vacation days, and said, "if we don't know how can we expect her to?" Heather has an email address but I don't know it. I'll let you know when I do. Heather is very nice, and has a good rapport with E; it's not that she's not doing her job, it's just that the system seems to be (at least to me) half-baked.

I'm just sick as a dog all the time, and the heat makes it much worse. They are saying 88 for tomorrow, although maybe they'll be wrong. I am not sure what the future may bring, but I do know that I feel much too awful to go anywhere.

posted by - 3:00 PM

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